Life with Michael

So we now have a diagnosis for Michael and a new journey begins.  Michael was just diagnosed with Myotonic Dystrophy.  His care has been transferred from Doernbeckers CH to Shriners hospital since they specialize in the Muscular Dystrophies.   He has the congenital form of Myotonic Dystrophy, which means his Mother has the condition is well but adult form.  My anger at her abandonment of him has lessened greatly after reading what symptoms she would present with.  2 of the biggest are apathy and depression.   What does this mean for us?  We know know why he has the hypotonia he has and why he does certain things or is delayed.  He was already getting OT,PT and Speech therapy before the dx so we are a step ahead in all that.  I had demanded it earlier when I realized his neuro deficit was hindering things.  Our house looks like a mini obstacle gym.  Now i will be ordering a sign language learning program because they usually sign for communication first, as speech is very delayed and