CMD-Washington-British Invasion
What a year! This has been a year of changes for both Michael and our family as a whole. So much has happened. Michael started 2 days at Head Start with typical children and does 2 days at the Education Learning Center as well. He is doing great at both. More interactions, more engagement, and more songs :) He shows off reading where his peers are not. Glad he has a strength to share. He LOVES riding the bus. He wants to ride the bus everyday. He wants to take his cat too. No Michael, cats are not allowed. We made the trek to Washington DC to meet representatives and participate in a Congressional hearing on Myotonic Dystrophy. Continue to fight for funding for a cure. We left Miles behind to attend the MDF Gala. Michael enjoyed himself but was the only Little Little one in attendance. We have wonderful friends, Sarah Ruane and her son Josh that live in England. Josh is also in the same Congenital Myotonic Dystrophy Study Michael partici