Washington DC Advocate,Conference and Zen.
This month we attended the Myotonic Dystrophy Foundation Annual Conference in Washington DC. We took our Representative Michael with us. He was the youngest to visit the Capitol as advocate during this trip. He was his charming self and very well behaved. Michael is well behaved and it is very nice to travel with him. We always get a lot of compliments. I have always said, My kids can be bears at home as long as they behave in public and Michael was an Angel and left the high pitch screech pretty much at home. THANK YOU! They have started Phase 2 clinical trials on a drug that we are hoping will help Michael in the future. It has to go through full adult testing before would be tried on children. Hoping for a successful future. We basically ran through DC, seeing bits of everything. I LOVE this city! I don't say that about most any city but I really did like DC. I haven't been anywhere in a long time where I could sit on a park bench and in 5 minutes, hea