Life with Michael

Tuesday we were up at Doernbecker's Children's hospital.  This time not really for Michael but for Steven my youngest son 15.  Steven has been dislocating his knees this last year fairly frequently.  His PCP referred him to make sure was not a serious connective tissue genetic issue.  All of his pre tests he passed so we knew pretty much that we were not faced with Marfan's Syndrome, though needed to confirmation. Michael's Physical Therapist, who was the first one to say "Have Michael tested for Myotonic Dystrophy." when everyone else was scratching their heads, said that she didn't think Steven had Marfan's but Ehlers-Danlos Syndrome mild form.  I think we will just go to her for now on if we suspect a genetic issue.  Yes, that is what Steven has.  It is also what most members of cirque du soleil have. It is not uncommon and usually just ignored as double jointed and flexible.   Steven has always been able to do things with his body that the rest o