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Showing posts from May 24, 2015

Another Diagnosis, another Tool Kit, another round of appointments.

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Michael had his Child Developmental Appointment for assessment of needs.  We walked in not knowing what was going to be suggested.  We walked out with the diagnosis of Autism Spectrum Disorder.  Ugh.  Now I knew a dual diagnosis is common with children with Congenital Myotonic Dystrophy.  We just didn't see Michael triggering enough of the bullet points for the diagnosis.  Shows how much I know.  I knew he had facial aversion until he knows you and sometimes even with us.  Yes, he has repetitive behaviors.  Spinning things.. Awesome!!!  Full body movements when excited, since birth.  Language, impaired but he has CMMD.  So what now?  100 day family kit for Autism with things to do each day.  A new Study to participate in about teaching kids with autism.  ABA therapy on top of even more speech.  :/  I am exhausted just thinking about it.  I am thinking to start it all after our vacation.  Lets go sit on the beach for 2 weeks and play and then come back to a new reality.   The orth