Light or Heavy?
I have been wondering what to write in this Blog. I keep changing my mind. Do I keep it joyful and light and concentrate on Michael and his accomplishments which bring us smiles every day? Do I tell what is it like raising a disabled child and moving among the systems and the tears that go with that? I have restarted this Blog many times now as this internal debate goes on. Screw the hard stuff and explaining, we are going to Disneyland! Michael is 3! Wonderful heavy 3. Kid is huge. We were gifted with a wheelchair by my sister's generous neighbors for Michael to grow into. After many many months of fighting with the system, we also FINALLY got him the wheelchair he needs now that is fitted to him and US. What a battle for that. It didn't happen before we made our trek to Disneyland with our wonderful CMMD family. We are very thankful it happened though! This last week we traveled to California for a Myotonic Dystrophy Conference. The day before the