Back in casts again

June brought the end of school.  Michael had a VERY successful year!  While he may not be typical, he did very well with typical children and made friends and socialized wonderfully.  Academically he is beyond what most of the other little kids were but physically and cognitively he is still behind.  We did get some great news though.  There is another drug going into Phase 3 clinical trials for CDM and cognitive issues.  We will be participating in the study!!!!!!!!!!!!!!!!!!!!!!  Michael will be in  Utah, so will end his current study prior to beginning the new study.  Already scheduled.  We again will be meeting Sarah and Josh who are flying in from England and hopefully Deanise and family will join us for the weekend.  We will have the boys together again.  

Michael has a visit with his sister and brother prior to having to go get surgery.  One last run around with Ruffle Butt. 

 Michael  had surgery again on his Achilles.  Is in double casts.   He has to have them on for a month.  I do not see an issue with AFOs following the casts though as he is getting around and spinning and keeping balance in his casts.  Hopfully this time we are successful with balance and school is not an issue.  I do not think he will have an issue by how he is doing.  

 This month we dropped Steven Jr off at his new place for college.  Wanted him to get oriented and all prior to starting and hopefully meet some new people.  Michael understands that Steven is not here anymore.  He cries every once in awhile for a minute.  When we went and took Steven a few more of his things,  we pulled into complex, Michael saw Steven's car and started yelling, "Steven! Steven!"  He made sure he got his squeezies as soon as Steven appeared.  







    

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